Wellbeing

Narratives of health and illness for Healthtalkonline

Calling for participants until

01 Apr 2026

Overview

The aim of the research programme is to improve understanding of people’s experiences of health and illness and provide online resources for people living with a wide variety of health conditions, their families, friends and the health professionals involved in their care.

Summary

What is the study about?

www.healthtalk.org (HTO) and www.youththealthtalk.org (YHT) are growing resources which currently cover over 100 health conditions. The sites are based on qualitative interviews and features an analysis of the 25 most important issues identified in the interviews and around 250 video, audio and written interview clips.

HTO studies may therefore be taken as a real indication of what it is like to experience health and illness, and allows access to real-life experiences (via the websites) to anyone whose life is touched by these issues.

What are you trying to find out? 

The aim of the research programme is to improve understanding of people’s experiences of health and illness and provide online resources for people living with a wide variety of health conditions, their families, friends and the health professionals involved in their care.

What does taking part involve?

Interviews collected within the programme will be used in a variety of ways:

  • for academic dissemination in peer-reviewed journal articles and conference presentations; 
  • for secondary analysis by academic researchers; to develop information for patients (e.g. on NHS Choices, NICE and other approved websites); 
  • to develop training packages for professionals in collaboration with, for example, universities, trusts and Royal Colleges; and 
  • to contribute to the award-winning websites at www.healthtalk.org (formerly DIPEx) and www.youthhealthtalk.org.

As part of an evaluation programme a selection of sites will be reviewed pre-launch to ensure that the site reflects people’s experiences of each condition covered. Health professionals will also be invited to comment on the proposed content of the sites to ensure that they address the issues that are relevant to the consultation.

Collaborators

  • Economic and Social Research Council Logo
  • University of Oxford logo
As a patient

As a service user, relative or carer using our services, sometimes you may need to turn to someone for help, advice, and support. 

Find resources for carers and service users  Contact the Trust